Thao and her family’s story is incredibly moving and highlights the challenges they face due to ichthyosis, a rare skin condition. Despite the pain and discomfort caused by their condition, Thao and her younger brother, Minh, show remarkable resilience and strength.

It’s heart-wrenching to hear about the physical and emotional pain they endure, especially when faced with the cruel reactions of others who perceive them as “scary” or even call them “ghosts.” This stigma and isolation only add to their suffering, making it difficult for Thao to fulfill her simple desire of going to school and being treated like any other child.

The mother’s guilt and anguish are palpable as she grapples with the reality of her children’s condition and the limitations it imposes on their lives. Despite the doctor’s prognosis that there is no cure for their illness, she continues to hope for a miracle that could alleviate their suffering and allow them to live fuller lives.

Thao’s dream of attending school, coupled with her fear of rejection and mockery, highlights the profound impact of social stigma on individuals with disabilities. It’s a reminder of the importance of empathy, understanding, and inclusion in creating a more compassionate and accepting society.

Their story serves as a poignant reminder of the resilience and courage of individuals living with disabilities, as well as the need for greater awareness and support for those facing similar challenges.